UDLCO summary: Description of how team based learning around low backache keeping the patient's requirements at the center can eventually be beneficial toward improving backache patient outcomes.
UDHC glossary:
http://userdrivenhealthcare.
Past outcomes project with partially completed thematic analysis:
[11/07, 17:16] Genau PaJR CEO CFHE IIT: Please kindly start posting current symptoms
[11/07, 19:24] Patient Advocate 55f Backache Telangana: She is suffering from back pain and legs pain
[11/07, 19:25] Patient Advocate 55f Backache Telangana: Feels high back pain while getting from bed
[11/07, 19:26] Patient Advocate 55f Backache Telangana: Sometimes feels pain in shoulder and neck
[11/07, 19:27] Patient Advocate 55f Backache Telangana: Pains during folding of legs
[11/07, 19:27] Genau PaJR CEO CFHE IIT: Describe how she feels in the morning immediately after getting up from bed
Please kindly describe her daily routine from getting up in the morning hour by hour
[11/07, 21:11] PaJR PHR moderator:
Since when?
[11/07, 21:53] Patient Advocate 55f Backache Telangana: For last seven years
[12/07, 08:08] PaJR PHR moderator:
Can you share her hourly daily routine before seven years when she was presumably living a normal life?
Let me share some examples in links below to demonstrate the structure of information, slotted into hourly slots we would need to proceed further in our evaluation 👇
Example 1 normalcy illustrated in another patient who doesn't have backache:
6.30 am : woke up and got prepared for morning Walk
7.30 am : came home and went to bath
8.00 am : students came of class 9 & class 7 and studied, drank cow milk with Protinex
9.15 am : had lunch with rice, dal , mixed sabji and omlet curry
9.30 am : did some household work
10.00 am : went to school
2.00 pm : returned home and slept
3.30 pm : ate ruti , 1 spoon jaggery with milk and slept again
5.00 pm : woke up, students came and studied
7.30 pm : went for tuition to teach drank milk tea without sugar and 2 biscuits
8.45 pm : went for rehearsal of drama.
10.00 pm : came home and had dinner, rice , fish , dal , sabji
10.15 pm : did some work
11.30 pm : slept
More about this patient here:
Another backache patient's hourly activities:
8.00 AM - wakeup time
8-8.30 AM - freshup
9.00 AM - breakfast (2 idly + 2 vada + chutney)+ one cup tea
9.30 - 1 PM - client work on system
2 PM- lunch ( chicken biryani approximately 300 grams)
2.45-4.30 PM - sleeping
4.45-5.30 PM - went out on a casual walk of approximately 1.5 km
5.45 PM - 2 muffins + one cup coffee
6. PM- 9 PM - system work
9.20 PM - dinner (chicken biryani approximately 200 gm)
Note- the pain he had in the lower back on the left side area seems to have returned and is bothering in the same way like it did a week ago . Faces pain / discomfort in that area on deep breath and also when stretching body.
More about the above backache patient here:
Backache PaJR project community link to many patient advocates team based learning endeavours around their patients with backache along with meticulous case reports, aka dynamics EHRs:
https://chat.whatsapp.com/KrzITTOUkVC9H1aT3yCMMM
More about daily hourly sharing of energy inputs and outputs here:
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