Offline dyadic to online Collective transition challenges ProJR with UDLCO CRH: Transition challenges from local offline dyadic healthcare systems to global online information user driven healthcare

*Summary and Thematic Analysis*

The conversation revolves around the challenges of transitioning from local offline dyadic healthcare systems to global online information user-driven healthcare. The discussion highlights the difficulties of maintaining patient follow-up and communication in an online setting, particularly when dealing with multiple patients and advocates.

*Key Themes:*

1. *Transition challenges*: The conversation emphasizes the difficulties of adapting to online healthcare systems, including communication and information management.

2. *Patient privacy and confidentiality*: The discussion highlights the importance of maintaining patient confidentiality and anonymity in online healthcare settings.

3. *Asynchronous communication*: The conversation notes the challenges of asynchronous communication in online healthcare, including delayed responses and lack of face-to-face interaction.

*Thematic Analysis:*

The conversation reflects the complexities and challenges of online healthcare, including communication, information management, and patient privacy. The discussion emphasizes the need for effective communication strategies and patient-centered approaches in online healthcare settings.

*Image:*

No image is available in the provided text.

*Poem:*

In the online world, we search and share

Healthcare information, with care

But challenges abound, in this digital space

Communication gaps, a constant pace 🌟

Conversational learning Transcripts:

No communication from the patient's advocate since the PaJR group was created in December 2023 or possibly the communication disappeared from chat due to either someone's turning on disappearing messages or changing the phone altogether.

[15/11/2024, 09:10]hu2: Any update on this patient?

[05/03, 22:35]hu2 : @⁨patient advocate 40M Polyarthritis⁩ @⁨Pt advocate 70f intestinal⁩ any update on this patient?

[06/03, 22:08] Pt advocate 70f intestinal: Yes actually patient's advocate in this side... On 2024 Six months after returning from Hyderabad, his knee pain started again. He is taking his painkiller medicine wysolone while the pain is increasing so much. Diabetes is under control sometimes then sometimes it increases then he visited a physician on starting of 2025 and is now taking medicine for diabetes also. He can't maintain proper diet because he loves to eat. He needs proper diet and yours suggestions and guidance for healthy  life. We are planning to will come for a check-up in October.

[07/03, 08:24]hu2 : The patient in this group is labeled 70F so we are a bit confused if this is the same patient you are talking about or is this a new patient?

[07/03, 08:28]hu2: If this is a new patient without a PaJR group then Next step is to download this form: [Informed Patient Consent and Authorization Form](https://userdrivenhealthcare.blogspot.com/2025/10/pajr-consent-form-modified-for-dpdp.html?m=1), read it, and sign it. 

Include the following details in the form:

- Age

- Gender

- Full address

- Brief description of the problem

- Today’s date

- WhatsApp mobile number

- Tick all the boxes indicating that the person signing has read all the paragraphs 

Then scan the form and send it to

Mrs Sailaja: +91 80747 25352, our team coordinator and archivist 

After that, she will create a separate PaJR group for the patient, and we can begin discussions with other team members regarding the patient’s issues to find the best possible evidence-based solution and also archive her deidentified data in an open access case repository as here: https://pajrcasereporter.blogspot.com/?m=1

Ask the patient or their relative to not reveal their identity to anyone. 

Ask them to simply introduce themselves as their patient’s representative so that we can all protect the patient’s privacy and confidentiality.

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[07/03, 08:28] Pt 40M advocate Polyarthritis: Not a new patient

[07/03, 09:01]hu2: Deleted the patient's identifier to protect his privacy.

This PaJR is for a 70F patient who was being followed up by you. Please provide her updates here if possible.

For the other patient you mentioned please follow the consent form sharing advice texted above

[07/03, 09:19]hu2: I can understand the confusion.

In the online world of collective cognition and asynchronous communication things are a bit different from offline synchronous face to face communication that thrives on biological memories of the local offline practitioner who may be able to review the patient more frequently and refresh his her memory with the paper based documents as well that are often carried by the patient who's face itself offers an instant recognition and recall.

The global online practitioner on the other hand has to contend with deidentification requirements that hide a lot of information about the patient along with the identifiers and also may not have access to the past history especially as in this patient who appears to be getting in touch for the second time after December 2023 with no follow up updates in between also not this particular patient in the group but another patient who is likely related to her.

For this patient without a PaJR group the next step is to download this form: [Informed Patient Consent and Authorization Form](https://userdrivenhealthcare.blogspot.com/2025/10/pajr-consent-form-modified-for-dpdp.html?m=1), read it, and sign it. 

Include the following details in the form:

- Age

- Gender

- Full address

- Brief description of the problem

- Today’s date

- WhatsApp mobile number

- Tick all the boxes indicating that the person signing has read all the paragraphs 

Then scan the form and send it to

Mrs Sailaja: +91 80747 25352, our team coordinator and archivist 

After that, she will create a separate PaJR group for the patient, and we can begin discussions with other team members regarding the patient’s issues to find the best possible evidence-based solution and also archive her deidentified data in an open access case repository as here: https://pajrcasereporter.blogspot.com/?m=1

Ask the patient or their relative to not reveal their identity to anyone. 

Ask them to simply introduce themselves as their patient’s representative so that we can all protect the patient’s privacy and confidentiality.

@⁨Meta AI⁩ please translate the above text to Bengali 

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[07/03, 09:19] Meta AI: নতুন রোগী নয়

আমি বুঝতে পারছি বিভ্রান্তিটা। সমষ্টিগত জ্ঞান আর অসমকালীন যোগাযোগের অনলাইন জগতে জিনিসগুলো একটু আলাদা অফলাইন মুখোমুখি যোগাযোগ থেকে, যেখানে স্থানীয় অফলাইন পেশাদার রোগীকে বেশি দেখার সুযোগ পান আর কাগজের নথি আর রোগীর চেহারার ভিত্তিতে স্মৃতি ঝালিয়ে নেন। অন্যদিকে, গ্লোবাল অনলাইন পেশাদারকে ডিইডেন্টিফিকেশন নিয়ম মেনে চলতে হয়, যাতে রোগীর অনেক তথ্য লোকচক্ষুর আড়ালে থাকে, আর অতীতের হিস্ট্রিও পাওয়া নাও যেতে পারে, বিশেষ করে এই রোগীর ক্ষেত্রে যিনি ডিসেম্বর ২০২৩ এর পর দ্বিতীয়বার যোগাযোগ করছেন, এর মাঝে আর আপডেট নেই। আর এটা সেই গ্রুপের রোগীও নয়, সম্ভবত আত্মীয় কেউ।

এই রোগীর জন্য যার PaJR গ্রুপ নেই, পরের ধাপ হলো এই ফর্মটা ডাউনলোড করা: (লিঙ্ক উপলভ্য নেই), পড়া আর সই করা। ফর্মে এই তথ্যগুলো দিতে হবে:

- বয়স

- লেখক

- পুরো ঠিকানা

- সমস্যার সংক্ষিপ্ত বর্ণনা

- আজকের তারিখ

- হোয়াটসঅ্যাপ নম্বর

- সবগুলো বক্সে টিক দেওয়া যাতে বোঝা যায় লোকটা সব অনুচ্ছেদ পড়ে সই করেছে

তারপর ফর্মটা স্ক্যান করে পাঠিয়ে দিন মিসেস শৈলজাকে: +91 80747 25352, আমাদের টিম কোর্ডিনেটর আর আর্কাইভিস্ট।

তারপর তিনি রোগীর জন্য আলাদা PaJR গ্রুপ খুলবেন, আর আমরা টিমের অন্য সদস্যদের সাথে রোগীর সমস্যা নিয়ে আলোচনা করে সেরা প্রমাণ-ভিত্তিক সমাধান খুঁজে বের করবো, আর রোগীর ডিইডেন্টিফাইড ডেটা ওপেন অ্যাক্সেস কেস রিপোজিটরিতে আর্কাইভ করবো এখানে: (লিঙ্ক উপলভ্য নেই)

রোগী বা আত্মীয়কে বলুন নিজেদের পরিচয় কারো কাছে প্রকাশ না করতে। বলুন নিজেকে রোগীর প্রতিনিধি হিসেবে পরিচয় দিতে, যাতে রোগীর গোপনীয়তা রক্ষা হয়।