For those joining in here and wondering what's the next step to their getting PaJRed:
Initiation to PaJR step by step:
[17/04, 22:20] CBBLE Patient Advocate: Sir would you look after this case please?
[17/04, 22:31] CBBLE Patient Advocate: She is a very intelligent and extraordinary child. The medication she is having for years seems to cause a lot of side effects.
Her parents had sent me all the de-identified reports, I can send you if you need or if a WhatsApp group is created, her parents can send everything there themselves.
[18/04, 07:17]cm: Will be a pleasure.
Please ask the parents to download this: https://medicinedepartment.
2) Please become your own patient's advocate and share your patient's problems in the following format below taking extreme care not to reveal any identifiers of the patient of his her treating team.
3) Also,
Please describe your patient's sequence of events that led to the current problems. Please begin the sequence of events from the time your patient had absolutely no problems at all.
Please describe your patient's hourly routine over 24 hours when he was perfectly alright
Next please describe what happened to his hourly 24 hour routine once the disease took hold on his life
Please mention specifically which part of the patient's hourly routine was disrupted
What are the patient's current requirements from us like if we had to give him a single medicine which problem would they prefer it to address?
Please post the patient's clinical photo of abdomen and arm muscle as demonstrated below in the image here:
Some examples of a PaJR patient's hourly activities:
PaJR involves daily sharing of energy Inputs and outputs from all our patients globally. More here: https://www.researchgate.net/publication/314328348_Patient_Journey_Record_Systems_PaJR_for_Preventing_Ambulatory_Care_Sensitive_Conditions
CUBE home lab Sunday PaJR patient hourly activities to expiate for metabolic syn:
7:00AM-8:00AM after walking the dogs and a little bit of Web 2.0 finger typing
It's time to transfer the dragon fruit cacti to a bigger pot and to set the stage PaJR patient transferred some compost and soil from elsewhere to the new location where it would be repotted. (Pics attached)
Initially tried lifting the soil bags to directly overturn it into the bucket, which was good for the arm muscles but when that didn't work , had to scrape them out with the hands and transfer to the bucket. Good workout for the forearm muscles!
Chopped a bush of Hamelia Patens that was nearly touching the roof and blocking the Sun for the mulberry (pics attached)
Also transferred a large pot from one garden location to another (pic attached).
Finally some more forearm muscle micro exercise trying to de seed these seeded dates (pic attached).
As a result of the above activity, the picture that apparently resembles a PaJR food plate energy input is actually a representation of some PaJR micro energy output!
8:00 AM to 9:00 AM PaJR patient activities video: https://youtu.be/V4eZQ5Hi38A?feature=shared
[18/05, 19:37] cm: What about the sequential timelined history in your patient?[18/05, 19:46] +91: Is there an example format for history we can look at?[18/05, 20:31]cm: Short history (detailed one below this): 1. The patient has tingling and numbness of lower limbs since 10yrs extending from tip of toes to shin of tibia. 2. Burning sensation of feet since 5yrs. 3. Chest pain since 4 days, pricking type on and off. No precipitating factors. 4. Loose stools for one day which was one week back and subsided with medication. Has Diabetes on injection Mixtard 20U BBF, 15U BD since 30 years Had kidney problem since 13yrs. Known case of Heart failure 2° to coronary artery disease since one month. History of stable angina, one month back. Detailed history: An 80- year- old male , born and raised in a middle- class family, had a father who practiced as an Ayurvedic doctor, treating people with herbal medications. He grew up with two elder sisters, one younger sister, and a younger brother. In his early years, he experienced the tragic loss of his eldest sister to Hansen's disease. A few years later, his second elder sister passed away after using herbal medications for suspected cancer. After his father's death from a brain stroke, financial hardships forced him to leave school. To support his family, he began working in handlooms while attending night school. The loss of his sisters motivated him to pursue a career in medicine and follow in his father's footsteps. He got married in 1962. Later, his younger sister was also diagnosed with Hansen's disease. After her husband abandoned her, he and his wife took full responsibility for her care until her death. His younger brother, who was diagnosed with Hansen's disease at the age of six, also passed away eight years ago. At one point, he purchased a power loom from Bombay and earned a living through it. However, over time, his neighbors also acquired similar looms, leading to increased competition and a decline in customers, which affected his financial stability. He has four daughters, all of whom are now married. Fifteen years ago, when his elder sister was diagnosed with diabetes, he decided to get a health check-up. Initially he managed his condition through dietary changes. A few years later, he began experiencing tingling and numbness in both feet. After consulting at NIMS, he was diagnosed with hypertension, diabetes, and peripheral neuropathy. Since then, he has been on conservative management. Full PaJR case report: https://pajrcasereporter.blogspot.com/2024/10/80m-diabetes-hypertension-30yrs-ckd.html?m=1
